Sorry, now I’ve got that song in your head. That is, if you listened to the radio in the 90s.
I had a good talk with our church’s minister a couple of weeks ago. She’s reached out to me a few times since Clio got sick last year, and I never managed to make it work for us to meet. But she got in touch again shortly after we got home from our last hospital stay, knowing it was a difficult stretch, especially with the added emotional factor of the Boston Marathon bombings. And this time we finally met, and talked.
I was actually in a pretty good frame of mind by that point. We’d been home from the hospital for a couple of weeks, and Clio was feeling great. But I told her about some of the things that were difficult about the whole thing, and about the pressures of the constant juggling act — which I’d liken to juggling about six tennis balls, plus one 12 lb. medicine ball — that my life feels like so much of the time.
Then I told her, she being a minister and all, how I felt jealous, sometimes, of people who had strong faith in God to comfort and support them when things were tough. (She, being a Unitarian Universalist minister, is probably used to this sort of admission from her congregants.)
I told her about the mother of one of the other cancer patients we’ve met, who is a devout Catholic. Her daughter has had a really, really rough go of things. But the mom always writes on her Facebook page about how they are in the Lord’s hands, and that the Heavenly Father has a plan. When things go well, she praises God and Jesus. Prayers — her own and those of her friends and family — are obviously a great source of strength and comfort for her. She reads the bible a lot.
I guess I’m what you’d call agnostic. Or a God-as-master-cosmologist-ist. Sometimes I believe in fate, and feel like things happen for a reason. Other times I don’t. Part of me believes in supernatural-ish things like ghosts and astrology and clairvoyance (I’ve been known to have some vaguely prophetic dreams) and past lives. Another part of me thinks it’s all bullshit. Mostly the astrology part. Anyway, I’m a mess of contradictions.
A couple of months ago, when we found out that Clio had a blood clot, even thought it wasn’t something gravely dangerous, I felt like I was at the end of my rope. Or a rope anyway. I wanted a longer rope. Actually, I wanted a net — something I could fall into and be caught by. I wanted to be able to pray to God for courage, or strength, or for some kind of answer. I wanted to know that everything was going to be OK. I wanted to be able to say, “Heavenly Father in your eternal wisdom, give me strength and take care of my little girl, I ask this in Christ’s name, amen,” light some candles, and feel better.
But I can’t. For starters, the “Christ” part doesn’t work when you think Jesus was a gifted teacher with a wonderful message, not the Son of God. And it’s hard when you don’t believe there’s any sort of “Heavenly Father,” (or mother) just, maybe.. maybe…some God-like cosmic force that unleashed the laws of physics. Because what kind of comfort could a cold, far-off “God” like that possible offer? It certainly can’t intervene, except to the extent that, thanks to those laws of physics it set up waaaay back when, the properties of various chemicals, found in the blood thinner Clio now gets, act as an anti-coagulant to human blood.
“Dear God-like cosmic force of yore, thank you for the laws of matter and energy, on the basis of which Clio’s clot can be treated. But no thanks for the way those laws of matter and energy gave her leukemia, thus requiring her to get the chemo that caused the clot in the first place. Hey, wait a sec: Are you in cahoots with the drug companies, God? WTF?? This prayer is over.”
My minister and I also talked a little bit about the way Alastair and I are so publicly sharing our family’s experiences, and the pros and cons of that. Almost all pros, though. I told her that it was incredibly therapeutic to write about all this (whether here or on Facebook or in places like HuffPo or elsewhere), and the support of friends, family and readers that follows is a big source of comfort and strength.
Then I had sort of a Eureka moment. Because here’s the thing: there is another version of God that I believe in, and that’s the collective consciousness version — the idea that “God” is another way of talking or thinking about the collective thoughts, feelings and spirit of all people.
It’s the connective tissue of human existence. It’s love, a lot of the time. Mostly, it’s just awareness — acknowledgment of our interconnectedness as sentient beings. And perhaps the cosmic-force God has some hand in this; maybe the rules that God set up that are ultimately responsible for the fact that human beings are endowed with consciousness, emotion, etc.
Anyway, here’s the Eureka part: I realized that that feeling of awareness and interconnectedness is amplified for me when I write about this experience. Knowing that people will read this, that they care, and might perhaps occasionally think of our family, I feel comforted. I feel heard. And I feel a little healed. The same way some people feel, I think, when they pray to God.
In other words, yes. You guys are God.
(And no, I’m not stoned! Honest! I mean, that might be nice, actually…But no.)
I mean, you’re not God god. But you serve a god-ish purpose. You, along with my far-flung friends and family members, are a fundamental part of my comfort and strength as my family makes its way through these perilous waters. Your presence — your awareness, your caring — is powerful, and a little bit mysterious. And I’m grateful for it.
Huge praise be to you.
Amen.
Jane I have read your blog for several years now. I have twin daughters who are just finishing second grade, and so it was that part of your blog that first drew me in. Now, of course, I’m hooked by your beautiful writing, honest emotions, and your sweet family. I share many of the thoughts and contradictions that you wrote about here, and really appreciated what you had to say.I think of your family often, even though I rarely comment, and also keep you all in my thoughts and “prayers,”
Thank you, again, Jane.
Oh, Jane. This is about as good as it gets. As a kindred spirit with regard to the conundrum of God’s existence, I have never wavered in my belief that it is the inherent goodness of humanity that is most holy; however, it is not always easy to put into words. You nailed it. Thank you for opening my heart a little more, as all good messages do. *hug*
Yes, this is exactly what’s bouncing around in my head as a response to this lovely post.
And this is wonderful too:
Poet Charles Bukowski:
For those who believe in God, most of the big questions are answered. But for those of us who can’t readily accept the God formula, the big answers don’t remain stone-written. We adjust to new conditions and discoveries. We are pliable. Love need not be a command or faith a dictum. I am my own God.
We are here to unlearn the teachings of the church, state and our educational system.
We are here to drink beer.
We are here to kill war.
We are here to laugh at the odds and live our lives so well that Death will tremble to take us.
We are here to read these words from all these wise men and women who will tell us that we are here for different reasons and the same reason.
Thanks for sharing, E. I love Bukowski’s words.
Jane, I believe in God and prayer, and collective prayer. I read all your posts and though I don’t comment on every one, I always pray for your family when I read the new post and then often after that whenever I think of your family. So I think of and pray for you a lot. And I’m sure I’m not the only one. And though praying doesn’t give YOU comfort, it seems like it comforts you to know that your family, friends, and readers are keeping you in their thoughts. And I believe that our private prayers find ways to comfort you in moments of lightness, brevity, peace in your heart. I believe our petitions to God gather energy with each new voice and reach across time and space to help Clio find the strength of body and spirit she needs to respond to her treatment. And I pray that this is true. I hope you find comfort and strength in this.
Thank you, Jane, for sharing your wonderful philosophical ramble to this deep pool of quiet reflection. Indeed, we are all part of so great a mystery that perhaps we can grasp only a little bit at a time. But what a gift to realize that we are all in it together and helping to keep each other afloat!
love, Asha
Also, the above should read “lightness, LEVITY, and peace in your heart. It’s hard to write an articulate, let alone coherent, comment with one hand while holding a fidgety five-month-old and answering the constant questions of a three-year-old. That’s probably why I don’t do it much… Peace be with you.
Jane,
I have a tattoo that is the symbol of 3 goddesses (i got with 2 friends one day)so makes sense that the people you love can be gods or goddesses for each other. “They” say that people who know they are being prayed for, actually feel the prayers. What you write makes that so clear, in a way that feels right to me. As always, I love your honesty and courage to write this. I have a girl with cancer who I’ve become friends with. They are SO religious but instead of deleting them as FB friends, I always feel they are lucky to have that faith and their Bible quotes seem so right for them. Thanks for writing this piece!
Shalom…
Jane, I’ve been reading you for a while now but have never commented. This was so beautifully written and perfectly captures how I feel about the Above and Beyond or the Awfully Big Adventure or whatever (Whoever) you want to call it. your family is so beautiful and Clio and Elsa are rock stars. Wishing you peace, blessings and love on this journey…we are all with you.
Ditto. Being in a rough patch myself and not being religious I recently was thinking the same thing. I finally gave it up to the universe and whatever that may hold to help me out. It gave me a bit of comfort and a bit of relief that perhaps someone or something else coins carry the load for a while. Things seem to have worked themselves out and there is a light at the end but sometimes it still sucks. And by the by, I think people think of your family more often than you think. Universe prayers to you all 😉
Somehow I prefer women in their all-natural beuaty. You’ll never know when those makeups will cheat u into believing they’re THAT beautiful. With advanced make-up techniques nowadays, you’ll never recognize that person once she removes her makeup! 😀
I have always felt that the light and spark in each of us is a form of “God.” And children, in particular, give off lots and lots of it! Spending some of that special glow, that warmth, to you and yours.
Oy! Typos… You know what I mean 🙂
I “pray” a kind and loving “god” for your sweet family.
Your virtual friendship means a lot to me and all your readers. We are glad to be here to help you in any way we can.
I may not have believed in God myself if it was not for Him straight out speaking to me and giving me visions and clear messages. Some people He screams at and others He just whispers to you. He comes the way that you need Him to come. Maybe subtlety works better for you. Maybe He works through your readers and loved ones to help you. Just a thought.
So glad Clio is home now and hope you guys have life get back to normal as much as it can. Have a wonderful Summer with the girls. Hope you guys have a lot of fun. Anything fun planned?
Hi Jane,
It does me good that I can help you just by reading your blog! How cool is that? Thanks for taking the time you do to write it. Yes, I think I’m in the “God is love” camp. Literally. God is just another word for love. I feel like I have a lot in common with you. UU church, fraternal twin girls (mine just turned five in March), liberal views, etc. I think of you and your family often. And it doesn’t surprise me that you get that vibe when I think of you. -Emily
Wow, Jane. Love your books and your blog, but don’t comment much. Just silent supporters, generally. This post was a real highlight. My girls and I think of you and yours often. Not much of a believer in deities, but I’m with you on the collective consciousness idea (and maybe with Jung, not sure).
How ever it works, we’re with you!
I am a long-time reader but I rarely comment. I just wanted to say how much I liked this post and how glad I am to hear that things seem to be headed in the right direction for Clio and your family.
Damn I just erased everything I wrote Too tired to start again. Maybe tomorrow. MIMI
Jane,
I met your husband last night and my family is singing some wonderful songs that he wrote with the folk chorale in a couple of weeks. Thank you so much for sharing your honest thoughts and feelings. This blog is beautifully written but mostly honest and genuine and will help you and others. I am thinking of you and your beautiful daughter.
I have twins boys who are 4. My mom died earlier this year of cancer. I read your blog awhile ago and when you stopped at babble it fell off my Google reader so I’m just now catching up. Anyway, I wanted to let you know that I’m not a huge God person either, but I pray constantly (to who -I’m not sure) for my family’s health, safety and happiness. I’m going to add your family to my prayer whenever I ask for those things. Your girls are so precious, many hugs from my family to yours.
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