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Photo-5

Home is where the hearth is.

I’ve been in a bit of a funk over the past couple of months. Not depressed, mind you. (Although sometimes I feel like I’m on the edge of it.) Just…something.

I keep reminding myself that it makes sense. We just moved, which is a big adjustment. I love our new house (see exhibit A, fireplace, above), and I like our new town in theory, but don’t really feel firmly rooted in it yet — which, of course, also makes sense. I miss the sense of community we had in our old town, specifically among parents of other kids at the girls’ school — some of whom were close friends, and still are. But they live 15 minutes away now instead of 5. Funny what a psychological difference 10 minutes can make.

I also sometimes miss the more urban energy of where we lived before, as I suspected I would. We went into Cambridge recently to see the Honk! parade, which was fabulous and weird and lefty and fun (Honkfest is something we look forward to every year) and it made me miss being as close as we we used to be to the awesomeness of Somerville and Cambridge. That area was home to both Alastair and me, separately and together, for 18 years (!) minus two years in Iowa.

But the biggest change, of course, is Clio’s treatment being over. I touched on this in another post, but some part of me really does feel a strange sense of loss at the fact that we’re no longer in that world, in the mindset of treating her illness.

It was an awfully intense sense of purpose we had, saving our daughter’s life and all. It occupied a huge number of hours, and immense quantities of emotional energy. We cried about it, we sang about it, we wrote about it.

And we HATED it! God knows we hated it. If I could go back in time and use super-power cellular X-ray vision to find that asshole cancerous lymphocyte that just had to start reproducing out of control, because it thought it was so freaking great, and thought it was its God-given duty to make like-minded babies, and I could zap it with a cancer-killing laser beam (scientists are working on one of those, right?) I would.

I never want to be back in that world. If Clio relapsed, I would be devastated. Even going back to the clinic for her monthly check-ups brings back unpleasant memories and sensations — more so now because it’s so infrequent.

But it is a strange, strange feeling, having it all receding in the rearview mirror. It is strange to think: “time for meds!” every morning and evening, and then remember that there aren’t any, except for Bactrim three mornings a week, which we periodically forget, because it’s so infrequent.

It’s strange to be invited to a play date at a bouncy-house place and have the knee-jerk thought that Clio will need to be extra careful, because of her blood thinners and her port, and then remember that she doesn’t have to be.

It’s strange not to have to worry about Clio getting flu this year any more than I would worry about any of us getting the flu.(Public service digression: Please get your flu shot, dammit. No, it can’t give you the flu. And listlessness is not caused by a small dwarf living in your stomach. The chance of having a severe reaction to a flu shot is extremely small. The chance of the elderly, infants, and immunocompromised individuals — like kids getting chemo — becoming seriously ill or dying from the flu is much higher.)

Digression over.

So, I float along, feeling mostly fine, thrilled that Clio is doing so well, of course, but also feeling decidedly a bit unmoored at times, here in our new, post-cancer treatment existence. The lightness isn’t what I’d call unbearable (that’s a literary reference, yo.) but it can be oddly uncomfortable. Like getting your land-legs back after being at sea for weeks. (Jeez, the maritime metaphors just WON’T STOP COMING!! Also: I have never been at sea for weeks. But even after a few hours on a boat, my balance is a little wonky for a bit, so I can imagine.)

I am trying to be patient, and treat myself gently during this transition.

13 Comments

  • Kathleen says:

    So good to hear from you, Jane. It makes perfect sense, as you know…somehow that never helps the adjustment, though, does it? I wish you tremendous patience and generosity towards yourself and your girls. You’ve had more than a little change and stress to deal with to cause major disequilibrium. May the inner turmoil settle soon, new community grow, and the memories of each new day make your place feel more and more like home. xoxo

  • Mandy Flaming says:

    Hello dear. I have been reading your blog for over a year now. Maybe longer? I haven’t ever commented, I just read and usually smile and nod and say to myself “Yes. That’s exactly how I feel.” My youngest daughter, Tatum, will be one year post treatment for ALL in November. It’s been a really strange year, being done. (As if you are ever done?) No one can understand how HARD finishing is, unless you are walking this road, or in this crappy boat as you say. 😉 It’s a whole new world and my hubs and I are still trying to find our purpose and footing. (As our girls sail forward, effortlessly!) Anyway, just wanted to say hi and thanks for all the posts you write. They have meant a lot to me. I am thankful our girls are well!

    • Hello Jane and Hello my sweet friend, Mandy! I’m so glad you follow this blog, and I agree with everything you both said. It is very hard to let go of the routine and the security(?) of treatment, even though we are so grateful to be moving away from it. The fact is, the world is a whole different place, and we see it through a certain filter that will, hopefully, clear up over time. Georgia is almost 29 months off treatment for ALL, and I still count the days in between appointments. And there’s also that thing of still not believing she was ever diagnosed in the first place. But the fog and the fear do lift, a very little bit at a time, and when you see your girl happy, healthy, and *free,* you can almost exhale fully. Almost. : )

      • Jane says:

        Thank you, both of you! For understanding, for reading, for being here.

        And it’s so true, Courtney. Sometimes I still can’t believe Clio was ever diagnosed in the first place. I find myself having those disbelieving, WTF? thoughts again for the first time since the first few weeks, when they were constant.

        Strange trip we’re on, isn’t it?

        Love to you and yours

  • SarahB says:

    Good to see your post.

    May something more joyous come to fill that empty space…may it be something joyous of your choosing, even, as you find your way to a new normal of health and home.

  • Lindsey says:

    If you need a Cambridge fix, anytime, let me know … xoxoxo

  • Korinthia says:

    You were in such a state of survival mode for so long, that’s hard to transition from. You had to be strong and creative in ways you had never been asked to be before. That’s an accomplishment. And there is always a letdown after an accomplishment. Enjoy the fireplace, enjoy the relative calm, and we look forward to more of your writing.

  • Deb Breyman says:

    Wine! Wine is good. It will help any mood.

  • Gar says:

    My doctor has just given me a new anti depressant (new for me but not new to the market) because I have a similar reaction to being in remission with my lymphoma… a sort of ennui, what does it all mean. I’m not unhappy, just a bit adrift. Hopefully we can continue to help each other through our separate and mutual experience.
    Love ya

  • Matt Weiss says:

    Hard to find that sweet spot, or at least hard to stay there. It seems we are, as Dylan put it, “condemned to drift, or else be kept from driftin’.”

    Let’s talk soon. We have some unfinished business from our rooftop conversation on Ledge Mountain, I think.

  • Brecky says:

    I too, totally know what you mean. We also moved. And I think that the change of surroundings has a lot to do with it. I think you have a lot of coffee-offers already, but add me to the list! Would love to catch up.

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