This post originally appeared on my now defunct blog, Baby Squared, at Babble.com
A little over a week ago, I was about to start on a big video project for one of my clients. I was putting the finishing touches on an essay summarizing the themes of my memoir, Double Time for another website. I was also planning to dive into work on a new novel.
We had three summer vacation trips planned — to Maine, to the Jersey Shore (no no, a tasteful part of it), and New Hampshire. Elsa was about to start tap dance classes, too. The girls were going to start kindergarten in the Fall. Clio was going to start playing soccer.
I was hoping to do a writing residency somewhere at some point this year. Alastair was planning to expand his work doing kids’ music shows and educational assemblies in schools.
In other words, our lives were (we thought) going to go along exactly as we expected they would. And then, last week, we were suddenly in the hospital and finding out that Clio had leukemia. And our life as we know it was dramatically changed.
No trips this summer — at least not for all four of us — while we’re in and out of the hospital. No kindergarten in the fall for Clio; it would be too dangerous for her compromised immune system. Our ability to work as many hours as we do now, uncertain. Clio’s going to basically have to be home-schooled for a while — plus there will be clinic visits and periodic inpatient stays. And that’s assuming no unforeseen complications or setbacks.
As for the novel I was planning to write? Well, I’m just hoping I can finish it in this decade.
And, of course, in all of this, there is the constant uncertainty about Clio’s health. The success rates for her form of leukemia — ALL Pre-B — are the highest of all pediatric leukemias, so we’re very optimistic. But I hate the idea of her not feeling well and missing out on things. I hate the fact that we’ll always be watching, waiting, hoping things don’t get worse. Most of all, I hate the thought that we could end up being the unlucky ones.
Since we got here to the hospital last week, Alastair and I have been switching back and forth at night, with one of us staying in the room with Clio and the other one staying in the parent room we’ve been assigned. Getting ready for bed and waking up in that room — the only time when there’s a bit of distance for reflection — is when it tends to hit me the hardest: just how completely and irrevocably our lives as we planned and imagined them over the next several years have changed. And how sad / scared / angry that makes me.
But I firmly believe — I have to believe — that there will be good changes and realizations that come of this unexpected turn of events as well. I don’t entirely know what those will be yet. But I do know that I haven’t had a lousy or trying experience in my life yet that didn’t teach me something or make me see more clearly or feel more deeply or, if nothing else, simply make me more grateful for the not-so-lousy times.
And sometimes, a “bad” life-changing experience like this can make previously hazy choices seem suddenly clear-cut and simple.
Which is my long-winded and overly-dramatic way of saying that it’s time for me to say a fond farewell to Baby Squared and Babble.
When I started this blog here a little over five years ago, I was in a very different place, and Babble was a pretty different place, too. It’s become increasingly clear to me over the last year or so that it would make more sense — given my priorities and preferences and style when it comes to blogging — for me to take my writing to a more personal, non-commercial venue. Clio’s diagnosis, and what it would mean for our family, was the clincher.
So, I’m moving my blogging efforts over to humbler waters.
It’s been an honor and a pleasure to be a part of Babble for the past five years. Blogging here has not only helped me “find my voice,” as we say in the biz, but has introduced me to tons of wonderful readers, many of whom I now consider friends in spite of the fact that we’ve never met: April, Lena, Michele, Stephanie, RossTwinMom, Nutterbutter, Voice of Reason, Hippygoth, EG, Gualojote, Korinthia, Oz, Dawn, Fernanda, Lin….others I’m surely forgetting, and others I don’t “know” as well. Plus all those who have offered their thoughts and prayers and support since we got this diagnosis. Thank you, all of you.
And whether you’ve been reading Baby Squared for five years or five minutes, I hope you’ll continue to read my words (and share yours) over at my new blog, Jane’s Calamity (janeroper.com or janes-calamity.com), join my Facebook page (the Baby Squared FB page will soon be defunct) and/or follow me on Twitter.
As Bob Dylan would say,
Stick with me baby, stick with me anyhow
Things should start to get interestin’ right about now.
xoxo
Jane
I tried to leave a comment over at Babble but they seem to be having issues…. (Nearly all the blogs over there are registering comments as zero and nothing I try to post comes up. Yet another glitch you won’t have to deal with!)
I’m so proud to be considered among your friends, virtual or otherwise. I’ll follow your writing wherever it goes, and look forward to updates about both Clio and Elsa.
Good thoughts always,
Kory
Added this one to Google Reader. You are way cooler than Disney, lady.
I also was so honored to be considered a virtual friend! Happy to be your in person friend if you or yours pass through Chicago someday.
Your attitude – that some positive might be found amidst this new unknown your family is facing – is astounding. You, woman, are the person to have by one’s side in a crisis!
My admiration only grows. Rock on, Jane.
Jane, I don’t know you or Alastair in real life. But I am the editor of an online parenting magazine and discovered Alastair’s music maybe 18 months ago. I’m not sure why I clicked on this link in Twitter, but when you mentioned Alastair in your post, I knew it couldn’t be anyone else. Tears sprang to my eyes.
I am sending positive vibes to you and your family. I know your husband’s songs have brought as much joy to your daughters as they have to mine.
As a previous poster said, keep rocking. <3
I am thinking of you guys. I will be following your journey with prayers and hope that everything gets easier for you.
Dear Jane, I will be wishing you, Clio and the family all the very best from London. I know Alastair’s father through work, have seen Alastair play a couple of times when over here, and I’ve enjoyed your blog since the girls were born – my son Antonio is a few weeks younger than them. I was so sorry to read your news.
I had a son before Antonio who died during childbirth and I remember that the mornings were the hardest because it would hit me all over again when I woke up. I also remember feeling that my brain was at war with itself. Half of it was refusing to accept what had happened and was trying to find a way to wake up and escape from the nightmare, and the other half kept saying over and over again “these aren’t the cards you wanted but you play with the hand you’re dealt”. I don’t know how that got into my head but for some reason I found it a strange comfort to remember that sometimes we just aren’t in control of what happens to us, only of how we face it. (Well a comfort some days, anyway – other days the raging denial part of my brain had the upper hand.)
I’m not sure why I put all that. Really I just wanted to send you much love and good tidings from over the seas.
Kitty
Dear Jane,
As a mama of twin girls, I have been reading your blog on babble for the past 2 1/2 years and always found your voice so comforting, honest, and humorous… just what this twin mama needed. Thank you for sharing so much of your lives with us and helping us with younger twins get through it. I will be keeping you and your girls in my thoughts and prayers and will definitely continue to follow you here. I like it here already.
Sending you and your family love and good vibes,
red
Jane, Yours was the only column I ever looked forward to reading on Babble. I’m glad you’re on own now. I’ve read BabySquared from the beginning but rarely commented. You and your dear family will be in my thoughts for all the many days ahead.
Dearest Jane, I’m struggling to find words. Clio’s diagnosis hit me very hard. I feel as though I have watched her and Elsa grow up right alongside my girls. Oh how I love their sweet faces! I cannot imagine what you are going through. I’m sorry that I haven’t commented earlier – I couldn’t find the strength, but I am comforted by the immense support and love (virtual and IRL) around you and Alastair. To say you will all be in my thoughts is an understatement. Every time I look at my own Baby B (Tristyn), I think of Clio. And yesterday, while outside weeding with Jaeda, she broke into song – one of Alastair’s songs…
Something struck me the other day that I wanted to tell you about this whole ordeal: It will be harder on you than it will be on Clio. Children breeze through experiences that simply become part of their history, while adults (parents) suffer under the weight of the reality. And even though your lives have been altered, you’ll all come out the other side stronger and wiser. Life is strange that way.
Thank you for keeping us all “in the loop”.
All my love,
Amber Lena
Still in shock over Clio’s leukemia, and so sad. Of all the world I strongly believe you’re in the best town for getting her help. The Boston docs worked wonders for another twin friend of ours, and I’m sending my best thoughts for you four.
Happy to make the move from Babble with you.
Know it’s selfish to say, but Alistair’s northern Virginia fans (especially our twins) will be heartbroken if he can’t make it to Jammin’ Java in October. Don’t cancel, reschedule!
Our very best to all of you.
I have been reading your blog(s) ever since I was pregnant with my daughter who is now 5. Your writing is enthralling: funny, poignant, affecting, honest and sweet. You are a wonderful mom and you are continuining to be a wonderful mom throughout these unfathomably trying times. Both your daughters are so lucky to have you there for them. They can be in no better hands. I have no words for what you are going through right now and I won’t even attempt to scratch some together. Just know that it too will pass. You are being challenged mightly, but you–your family– will emerge from it eventually. And throughout it all, know that you are a wonderful wonderful wonderful mom and that will make all the difference.
You are amazingly strong.
It would be really nice if the universe had just given you a gentle nudge to push you into a different direction instead of a body check but as unsubtle as this push is it will all work out. Continued positive thoughts for your family and you know we all are pulling for you. We home school, and while it’s not what you hoped for Clio I’m sure she’ll thrive.
Everything Has Changed