So, first a quick update: Remember that shadow on the wall that might have been either a teensy weensy mouse or a big, badass rat? Well, it turned out to be….neither! Who knows? Clio’s white blood cell counts last week were too low — a normal, though quite delayed reaction to the last round of chemo she got — so we didn’t go to the hospital as planned. Which meant that what we assumed would be our schedule of stays over the next eight weeks went out the window. And may yet change again, if there are more delays.
Tra la la! Cancer is FUN!
Anyway, we will probably (possibly?) end up going into the hospital this week instead. We won’t know for sure until late tomorrow afternoon after Clio’s labs come back. (A nurse will come to our house and draw blood in the a.m.) My bag is still packed from last week, as is Clio’s, so we’ll be more or less ready to roll.
Now, on to the Gold and the Pink thang:
As you probably know — unless you haven’t been out of your house or on the Internets for the past couple of weeks — it’s Breast Cancer Awareness month, or “Pinktober” as it is known in some circles. Breast cancer is the 3rd most common cancer in the US, but when it comes to sheer marketing / PR power, I think it’s fair to say that breast cancer is number one. Susan Komen for the Cure, the Avon Foundation and other initiatives have worked wonders to raise awareness and money.
And I think it’s awesome. Although I will admit, as the mother of a child with cancer, it’s hard not to be slightly jealous. I know that other people whose lives have been touched by non-breast cancers feel this way, too. (The immensely talented and lovely wife of a co-worker of mine, who lost her battle with ovarian cancer a year and a half ago at age 39, wrote eloquently about this.)
Of course, childhood cancers are much much MUCH less common than breast cancer — only (!) 11,000 new cases per year of all pediatric cancers combined to breast cancer’s 200,000+ new cases. So I wouldn’t expect it to get anywhere in the realm of the same visibility.
But I never even knew September was childhood cancer awareness month until this year. Nor did I know that Gold was the color for childhood cancer awareness.
Next September, though, we’re going to be celebrating around these parts. Well, to the extent that you “celebrate” a disease awareness month. Because next September, my awesome and extremely talented musician husband, Mr. Alastair Moock, is going to be releasing a new album especially for kids and families dealing with cancer (along with kids and families who just dig good music).
This will be Alastair’s third family music CD, and his goal is to make free copies available to pediatric oncology programs around the country. The songs are written and ready to go, and they’re empowering and inspiring and fun. I know that they’re going to bring joy and strength and other good stuff to a lot of kids out there.
The only thing is, making a CD — a good one, with high production value and great musicians — is expensive. And then there are the costs of getting it out to all those programs. And the fact that we’re not exactly flush with cash to invest in creative ventures at the moment. So Alastair is crowd-funding the project.
The support people have shown so far has been incredible. We’re almost there. But not quite.
So if you’d like to put a little gold in your Pinktober and lend a few bucks to this worthy effort, check out the album’s fundraising site, where you can learn more about the project (and hear a clip of Clio singing with Alastair on one of the songs they co-wrote!)
Oh yeah, and there are lots of cool incentives for donating, including a free copy or download of the finished album and a signed copy of some book called Double Time by some joker named Jane Roper.
Thanks in advance for helping out. Here’s the link again.
Then once you donate, go buy something pink!
Jane Roper is my favorite Joker! Which batman movie was she in again…? No, wait, I think I saw one of her Stand-up shows on HBO.. NO? Huh. Well, I like her name; I bet she’s an awesome roller derby queen.
I got my copy ordered! Can’t wait!
My mom is a two time breast cancer survivor that does not buy into or participate in the pink stuff at all. Not a single bit. She actually loathes it. She is a complicated person when it came to that. She never told me she even had cancer. She hid it from me both times once in middle school and once when I was in college. Didn’t want to “Burden” me.
Now you are thinking “Wow she must be a very self absorbed person to not notice her own mother was going through chemo and radiation.” Not really though because the woman hid everything. Her house was still spotless, she cooked, she did errands, she did not let a single thing slip. I don’t know how she did it. She might be a super hero. She never lost her hair.
So I don’t know. I think she has a hard time fitting in with other breast cancer survivors. She had zero support from anyone. Partly her own fault but I just doubt many people would have done that much for her so I guess that is why she never asked. It is very sad.
I think all cancers deserve the same recognition as breast cancer.
Wow, April, that’s amazing (and sad) that she managed to hide it from you. She probably would say I’m a nut job for sharing so much about our family’s journey. Glad you don’t take after her in that regard. 🙂
haha yeah I am an OVERSHARER of the worst kind! I can’t keep my mouth shut.
I find the pinkwashing very difficult to cope with. The impact Komen and Avon have on fundraising for other cancers is part of it, but also the emphasis they place on just the disease, and not the other diseases that contribute and make survival harder for women (diabetes and heart disease, for example). And then I remember that in Boston, Black women are less likely to get breast cancer than white women, but more likely to die of it, and really need that funding that Komen and Avon provide, and then I remember that it’s all really complicated. In any case, I would rather give my small donation to your effort so I will join up!
It is really complicated. And you make an excellent point about the contributing factors of heart disease and diabetes (as well as the problem of access to affordable care to prevent these conditions from worsening or happening at all).
Thank you for your contribution!!