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Mom and Dad, near the end.

A few days ago, I mentioned that one of our cats, Opie, singed his fur by walking too close to a candle. (Idiot.) What I didn’t mention was 1.) How pungent the smell of burned cat hair is. (We had to open the windows) and 2.) Why we had a candle lit in the middle of the afternoon. I mean, this America, and a person can light a candle whenever they goddamned please. But this candle had a particular purpose: It was a memorial candle, for my dad, who passed away on March 9.

We lit a 7-day shiva candle back in December when my husband’s great aunt, Sophie, who was Jewish, died, in accordance with Jewish practice. There was something very comforting about it—this quiet, visible reminder of a major transition. I am not Jewish, nor was my dad, but a lot of faiths and cultures light candles for the dead and have for centuries, either on the anniversary of their death or during mourning or in remembrance. So with all due respect and gratitude to those traditions, I hope it’s OK that I’m doing the same. (I’m a UU. Syncretism is what we do.)

And then the fucking cat walked too close to the candle, trying to get at a bag of balloons in a nearby, half-ajar drawer, because he has a plastic chewing problem. We didn’t actually realize he was burned until we noticed the smell. And then Elm went to investigate and saw that a large swath of fur on his left side was tinged dark brown on the tips, like a little cat ombre. I don’t think he even felt it.

But, yeah, so, my dad.

He was first diagnosed with colon cancer back in 2016, got a colectomy and did chemo.  But the cancer reappeared in his lungs in 2018. He was able to hold it off with chemo for almost two more years after that, but this past December he started having a lot of pain and nausea and other issues; he slept more and more, and his appetite shrank. In early February, they discovered that he had cancer in his bladder and ureters. In late February, his kidneys began to fail. On February 29 he began hospice care, at home, and I went up to Maine to help my mom take care of him.

It wasn’t pretty at first. He was in a lot of pain, and very anxious and agitated and delirious. Ultimately, we needed to keep him quite sedated, which was hard, because it meant he was sleeping more or less all the time. We gave him medications every 2-3 hours, including overnight. Either my brother or I slept on the couch next to the hospital bed we set up in the living room, and traded off medicine administration shifts with my mom.

The hospice nurses and aides who visited each day were truly wonderful. Neighbors and friends of my parents stopped by with food, and some played instruments or talked with my dad, though he couldn’t really acknowledge them. He seemed to hear sometimes, and would squeeze a hand or manage to get out a word or two.

During the day, I kept music playing for him— stuff he’d always liked: folk and traditional Irish, a little country, a lot of stuff from the 60s and 70s: The Beatles. John Denver. Peter Paul & Mary.  Brigadoon, Camelot, Man from La Mancha.  I  joked to my brother at one point that I was “DJ Death.” (Black humor is a must at such times.)

As difficult as it all was, I found it to be a very tender and healing time. My dad and I were always close,  but he was a complicated man who struggled with the demons of his past, and we had a complicated and sometimes painful relationship, particularly over the past year and a half. At the end, though, the hurt was overshadowed by the love, the good memories, the many gifts he gave me over the years. There was closure—at least for me.

We did our best to make things peaceful and painless for him. I think we did from a physical standpoint, mostly, but I don’t know if he ever really felt at peace. It all happened much sooner than he’d expected—than any of us expected. But it happened.

It happened at the strangest possible time.

While we waited by his side during those days, Super Tuesday happened (Remember Super Tuesday? Remember the primaries? Doesn’t it seem like ancient history?) and that was the last “normal” news I remember. Gradually, the coronavirus situation took over. The World Health Organization declared it a pandemic. The numbers were going up and up and the US was bracing itself.  My mom and brother and I, meanwhile, were in this strange, bubbled space, doing this elemental thing: Ushering a loved one out of the world.

And then he was gone. And….bam. The world was on fire.

I bought toilet paper and extra canned goods on the way home from Maine, where the shelves hadn’t been emptied yet. (And wine. I also bought wine.) There were basically only two days after my father’s death where I felt like I was actively grieving and sad, the way one would expect to be. Then school was canceled. I stopped going out except to walk, run, and buy food. I became, and still am, so preoccupied by it all—so focused on adjusting and coping and worrying and trying to provide some semblance of routine to the kids—that my dad’s death feels like just one more surreal thing in a time when EVERYTHING feels surreal.

I’ve said to many friends who have checked in on me that I don’t know if it’s a good or a bad thing, for him to have died at this moment in history, except to the degree that I suppose it’s good it happened before things got bad.

“For now, it’s just a thing,” said an old friend. And I think that about sums it up: It’s a thing.

My dad passed away two weeks ago. The grief emerges at unexpected moments, and sometimes makes my breath catch. It’s there when I talk to my mom on the phone, as I do nearly every day. It’s there when I wonder what he might make of all this, and how he and my mom—as a pair, not my mom alone—would be coping.  It’s there when I see Elm wearing a sweater I brought home from his closet. But much of the time, it’s drowned out by the tumult and enormity of the current crisis. I wonder if, when this crisis abates, the loss is going to hit me like a ton of bricks.

I wonder if other people who are experiencing losses and tragedies and life challenges unrelated to the pandemic are feeling the same way.

I’m trying to figure out if I can bring it back around to the cat here; something about him barely feeling the burning of the candle on his fur, and how it’s analagous to me barely feeling the fact that my father died. But I don’t think I can make it work.

Excuse me while I go chew a balloon.

xoxo

Jane

 

15 Comments

  • Abu says:

    Beautiful, Jane.

  • PB says:

    Long-time reader, probably first-time commenter? Idk, I’ve been reading your blog since the girls were around 18 months, I think, and I’m not sure I ever commented other than to tell you that I loved “Eden Lake.” Anyway. I’m so sorry for your loss, and for the loss of time to process it, due to everything else. Sending you love.

  • Wendy Mastronardi says:

    Dear Jane,
    Your family has been very much on my mind. Thank you for sharing this. It must also be hard for Alastair and the kids, who were not able to be there. How beautiful that you were able to play music for him, and he was able to be with his family.
    I (blessedly) have not yet lost a parent. I remember when my 89 year old grandfather died. I was so shocked that I felt “I was not ready”. How could I not be ready for someone who was 89 to die??? Well, I wasn’t, and that feeling comes back every time I pause long enough to think of someone else’s loss.
    My heart is with you and your family.
    Much love,
    Wendy

  • mfc says:

    Thank you for sharing this in this way. <3

  • Michael Bird says:

    Thanks for this, Jane. My father-in-law’s cancer has followed a similar timeline and he just began hospice care at home last week. It is a very surreal time for this to be happening. The situation in the outside world is making it hard to get him some of the food, medication and supplies he needs, and his son can’t be here to say goodbye as he lives in the U.K.

    I hope you write more on this topic eventually, as I really appreciate your perspective on things.

  • Meg says:

    Love love love and been thinking of the whole family

  • ESL says:

    Thank you for sharing this. I’m so sorry for your loss – and at such a surreal time. My mother just passed away on Sunday. She was hospitalized very suddenly just a few days before, in a state too far to drive to, and so due to the current restrictions and concerns I wasn’t able to travel to see her before she died. So my experience was somewhat different, and I know there’s pros and cons to either situation. Tomorrow we have a graveside service with only 7 people so we can continue social distancing. Today we had a WebEx call with 6 households and the rabbi to discuss my mom’s life. There is definitely a surreal element to be going through this, and I miss that we cannot surround ourselves with friends and family. But I am grateful that I have my children with me 24/7 (twins, very close in age to yours) for hugs any time I want them.

    I hope you can find comfort and peace in whatever ways they come to you during this trying time.

  • Lindsey Y says:

    I relate a lot to your experiences. My dad passed away two years ago from lung cancer. I had been caring for him for several months before that.

    I have been surprised at how powerful the emotions have been over the past few years. I was quite sad in the first few days..The first few weeks after his death, I was totally distracted. Feelings of complete distraught would well up from my belly at random times, and I was in a daze for the first few weeks.

    Even now two years in, the emotions feel more stuffed into the bottom of a closet rather than completely gone. It really only takes one little thought about my dad and out the emotions come.

    It will get better, but the feelings will never go away. Instead, they simply become part of your being, and we have learn to accept that and embrace it. There are some things in life worth remaining emotional about. The death of one’s parents certainly qualifies.

  • KS says:

    Xoxoxoxo

  • Amy says:

    I so get it. My dad died on January 8th – and here we are in March, and I’m preoccupied by what is going on in the “real” world but there is this grief that seems to rear its head mostly on Sundays, which was the day we used to have our lengthy phone conversations. I forget, and then suddenly I’m in tears. Strange days indeed. Sending you a virtual elbow bump. Or ankle. Whichever you prefer. Stay well. xo

  • P"Sam"H says:

    I hope one day I get to sit and visit and drink wine with you, m’dear, and tell Gar stories, and cat stories, and chew some plastic. Grief is a sneaky bastard. Expect it to come and go a while. If we’re lucky, it washes out our wounds and smartens us up a bit. I suspect we’re all going to be dreadfully smart in another year or two…
    Be well. Keep writing. Keep lighting candles. Put out the cat. xo

  • I have always love your writing, but this is special…. I commented earlier how you will discover how this will eventually be a positive thing for you… I lost. my Father relatively early; he was in his late 50s & I in my early 20s. It was a heart attack, quite sudden, he was dead before I made it home. My Mother lived until she was 90, but for the last 6 years she was in dementia &, for the most part no longer the brilliant woman I had grown up with.
    So eventually you will come to realize how lucky you were to be able to share your a Father’s “final chapter”. I suspect that this, in combination with the girls’ growing independence, will empower you to finally realize your dream of truly writing things of consequence. I know (as all the comments I read here demonstrate) that I will not be the only one happily waiting to devour ( & hopefully purchase) those products.
    Please be well, give my regards to A, and keep me in mind if you find yourself in either FL or Stockbridge.

  • Rachel H. says:

    This was such a beautiful post, Jane. I have been thinking about you and your family, in moments when I am not all-consumed with the current situation at home and at work due to COVID-19. I always enjoyed the time I spent with your dad when visiting your family. I am so glad that you were able to spend your dad’s last days with him and that you and your bother were there to support your mom as well.

    (Also – I can’t think of a better person to be “DJ Death” – you may have a new side business creating playlists for the dying…)

  • Ron C. says:

    Thank you for sharing this beautiful story. I’m very sorry for your loss. A lot of us at this age are going through or will be going through this soon. I don’t think I’ll ever be ready for it. It’s wonderful that you got to spend those last days with him, by his side, with your family. I hope he’s found peace, and that you and your family will, too.

  • Barbara Buck says:

    So sorry for your loss. I lost my Mom last year to dementia and I find the grief ebbs and flows. It’s still there. It will always be there. But the good things and the poignant moments come in and out too. It does get easier. Be well and stay safe.