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Nothing to see here. Just your typical, all-American family vacation.

Nothing to see here. Just your typical, all-American family vacation.

One of the odd things about life post-cancer-treatment, I’m finding, is navigating when and when not to reveal what our family just went through to people I don’t know well.

I mean, it was always a little tricky to know how or if to drop the C-bomb. But when Clio was in treatment it was such a big part of our lives that it was hard to avoid. It was part of what we did and who we were, so if the fact of Clio’s cancer was relevant to the conversation, I didn’t shy away from mentioning it. And, obviously, I blabbed about it willy nilly all over the internets.

Now, though, it’s less clear. Is bringing it up worth the explanations and reassurances (“she’s doing great!!”) it requires? Is it worth the potential discomfort for me and/or other people? Do I need to say something about it, or do I want to? And if so, why? (Or why not?)

Anyway, it leads to funny internal dialogues with myself.

Example: Recently, we were at a social event with families of kids our girls go to school with — people we’ve met just this year — and people got to talking about trips they’d taken to Disney World. As you may recall, we also took a trip to Disney World not too long ago — a trip we almost definitely wouldn’t have taken if Clio hadn’t had the opportunity to wish upon a star and alla that.

So I’m sitting there sipping my beer, and something kind of like this is happening inside my head:

Me: Should I join in this fun and entertaining conversation about Disney World that people are having?

Also me: Why shouldn’t you? You guys went to Disney World, right?

Me: Yeah, but I would feel weird talking about it without mentioning that we went with Make-a-Wish.

Also me: Why? You can just talk about the rides and the crowds and whatever else people are talking about.

Me: What crowds? We got to cut all the lines. Our experience was completely atypical.

Also me: Oh, come on. You met characters, you went on rides, you ate the giant turkey legs in Frontierland—

Me: We did not eat the turkey legs.

Also me: Fine, no turkey legs. But it’s not like your trip was that different from anybody else’s when you get right down to it.

Me: Maybe, but it felt like it. I was constantly aware of why we were there, and what the previous year of our lives had been like, and what a blessing it was that we were all there together. I’d feel weird talking about it like it was a run of the mill vacation.

Also me: So feel weird, then. It’s not like you have to reveal every little thing about yourself all of the time, Miss blogger-memoirist-write-about-your-boobs-and-mental-illness-and-Faceb00k-and-Tweet-every-other-thought-that-enters-your-head.

Me: I don’t write about every thought that enters my head.

Also me: Please, girlfriend. I bet you’re even going to write about this internal dialogue.

Me: Did you just call me girlfriend?

Also me: Doesn’t really work, does it.

Me: No.

Also me: Noted.

Me: Anyway, I guess you’re right. It’s not like I have to reveal every detail of my life in every conversation. A gal can have a few secrets.

Also me: Exactly. And it might be nice, actually, right? Part of what’s great about Clio being done with treatment is that cancer isn’t such a constant part of your life anymore.

Me: It’s true. But—wait. What if someone asks where we stayed? Then what am I supposed to say?

Also me: Er… “Some place out in Kissimmee, you can’t remember the name of…?”

Me: Yeah, right. No, see, I’ll have to tell them that we stayed at a resort just for wish families. And then I’ll have to explain. And the whole conversation will come to a screeching halt, and people will feel obligated to say the usual things, and then everyone will stare down into their beers and feel awkward, and I’ll make some joke to try to get the conversation back on track, but it just won’t be the same. And all because I just had to chime in and talk about how, ha ha, our kid cried on Space Mountain, too.

Also me: Hm. You have a point.

Me: See what I’m saying?

Also me: So fine, then. Just listen and smile politely.

Me: But I kind of want to get in on this conversation. I like these people, and it’s a fun conversation. The newlyweds in matching bride and groom mouse ears are annoying! And won’t they think it’s weird that I suddenly got all quiet?

Also me: Don’t worry. They probably just think you’re silently judging them for going to Disney World.

Me: Thanks, you’re a big help.

Also me: Kidding! Sort of.

Me: See, if I knew that they knew about Clio, I could just join the conversation and it wouldn’t be a big deal. But I don’t know. It’s possible they do, through other people in town we have in common. And my website is right there in my email signature, so they might have read my blog. Or if they know about Alastair’s music, they might know…Right?

Also me: Don’t look at me! I have no idea.

Me: Ugh. I think I’m going to have another beer.

Also me: Get me one, too. We can talk about how Elsa cried on Space Mountain.

Me: I still feel terrible about that.

Also me: Hey, at least it wasn’t the kid with cancer, right?

Me: Ha! High five.

Also me: I love you, man.

Me: Uh-oh…

Also me: What?

Me: I thought I just heard someone over there say they don’t vaccinate their kids.*

Also me: Oh, we are going to go drop the shit out of that C-bomb if they did, girlfriend.

Me: Damn right we are, girlfriend.

{SFX – Trombone} Wa wa wa wa

 

See what I mean?

 

*This didn’t actually happen.
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6 Comments

  • Richard Fox says:

    It’s always a quandary, when to talk about the cancer experience. During treatment and recovery, cancer is your job, your life, your foe. Time heals and though you remember the worst of the wounds, the painful edge abates. Being a survivor is a great gift. Yeah, you may not want to jump into the Disney ditz, but there is likely someone in the room who is dealing with cancer or has a loved one who is fighting the disease. For all the discomfort the Disney discussions can bring, the golden opportunity to reach out to someone the way only a cancer survivor can is gold. It’s a rare earned privilege. I got through treatment and recovery on the backs of survivors. They held my hand, knew what I was feeling, and gave me the encouragement and strength I needed. Now I am blessed to do the same. Stay Strong on Rock On!

  • Catherine says:

    Brilliantly well-observed as always.
    Best example of this from my family: My mom talking to a new family at church who is planning a trip to NYC, which we’ve visited a lot for my treatment and follow-up. She’s advising them on places to eat, stuff to see, etc.
    My little brother, all of five, pipes in with “You should stay at the Ronald McDonald House! It’s the best hotel ever!” Cue awkward silence and a hasty explanation from my mom, including the joke “Yeah, if you don’t mind the price of admission.”

  • Ellie says:

    I don’t have advice and never participated in a Disney conversation, but yes the Make-a-Wish situation is awkward; a family I work with went, but the cheery ”we get to go because he is suppose to die before the age of 18 years old!” comment is a no-no. Reminders of the reality of death are awkward I guess.

  • Caroline Whalen says:

    i have gone through these feelings with my own Heath issues. I found that i shyed away from conversations where I felt I couldn’t share genuinely. ( in other words if I felt I needed to edit myself or was worried about anything) Eventually as years passed I felt more disconnected from my experience to feel more comfortable sharing exactly what I wanted, nothing more, nothing less. And I always share if I feel like it will benefit the other person to hear it 🙂
    Just my experience, we all have one right?? Your so funny by the way 🙂

  • Liz says:

    The internal dialogue is perfection. Because yeah, where’s the line? You don’t want to actively NOT bring it up and pretend it didn’t happen, but you know full well how it derails the conversation. And only that much harder in a newer social group where not everyone knows the back-story. If they already knew, you could just say it and move on. So tricky to navigate.

  • April says:

    Love the way you ended this one with the f the anti vax people. My favorite part.

    I think you do whatever you feel comfortable with. If people don’t like it, they can get over it. Its your truth and if you want to talk about it you can or you don’t have to.