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“I look weird.”

Not me, that is. (I just look like I have a budding spare tire, thanks to way too much holiday food and drink — on the heels of way too much Halloween candy stolen from my children, and the fact that between illness and work and weather, I haven’t been able to run as much as usual. Ugh.)

It’s Clio. And she doesn’t look weird at all. She just thinks she does.

She’s been such a trooper all along about the changes in her appearance due to chemo and steroids — losing her hair, gaining weight and getting puffy cheeks due to steroids, not growing at all for basically two years while her sister and her peers shot up like dandelions around her.

She complained occasionally about the way other people saw her: she didn’t like it when other kids stared, or said she looked chubby (aren’t children darling to each other?), or mistakenly thought she was a boy. But her distress, for the most part, seemed to be externally focused — it was about how other people saw her. She didn’t complain a whole lot about how she saw herself.

Lately, though, she’s started saying that she looks “weird.” That her cheeks are chubby. That her hair is too thin. That she isn’t pretty.

What’s crazy is that her cheeks really aren’t chubby anymore. That is, they have all but completely lost their steroid puffiness. She’s always had a fairly round face, and the shape is almost all the way back to what it was before she began treatment. Her body has returned to its petite little shape. Nobody would look at her and say she was fat.

Her hair, yes, is thinner and coarser than it was before she was diagnosed, but I think to most people she probably just looks like a kid with a cute short haircut. (Especially since she’s started asking for barrettes in it. Adorable!)

Our church does a nativity play on Christmas eve  — which is a little funny since it’s a Unitarian Universalist church, and Jesus is viewed as a great teacher, but not any more divine than you or me, but what the hell. It’s Christmas, right? So we watch the kids dress up, adorably, as shepherds and angels and magi, and we sing bowdlerized Christmas Carols and, in the case of many of us in the congregation (myself included) feel nostalgic for the various Christian churches we fled.

Anyway. Elsa has done it for the past two years (angel, then magus) but Clio has sat it out, preferring to watch from the pews. This year, though, she expressed interest in participating. She’s gotten really into theater, and is even doing a serious children’s theater production that she had to audition for and everything.

Specifically, she wanted to play Mary. I told her that usually an older girl played that part, but asked anyway. And none of the older girls had bitten, so Clio was given the honor. Elsa, meanwhile, nabbed lead angel, which means she gets to hold the big star and look regal and sublime. (We’ll see how that goes!!)

But then Clio balked. “Everyone will look at me,” she said. I’m not pretty enough, she said. I look weird. She held her hands against her cheeks. “I have a fat face.”

What am I supposed to say to that? I mean, forget trying to convince her that it doesn’t matter, and beauty is on the inside and alla that. (Which we do tell the girls on a regular basis.)  Seriously, she does have a lovely face. Round — but not fat — and lovely. Right??

But it’s so hard to see yourself as others see you. When I weighed 105 pounds in high school, I was convinced I wasn’t thin enough. I didn’t see what a twig I already was.

So, I don’t know. I’m probably going about it all wrong to try convince her that she is, in fact, beautiful, instead of just telling her that she radiates inner beauty, or whatever the parentally PC thing is. (I’m sure the internets will tell me.)

But last night at a friend’s tree-trimming party, while a big group photo was being taken, I was looking at her from the side and she looked so sweet (Mary-like!) and lovely (as did her sister, sitting lead-angel-like above her) that I just had to snap a picture. I don’t know why it came out so blurry, but you get the idea.

I haven’t shown it to her yet. I don’t know if she’ll see what I see, anyway. (And yes. I am making a Christmas carol reference with that phrase. Clever, eh?)

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Having known the pain of not feeling pretty enough (as do most girls at some point, I assume), it makes my mother’s heart hurt that she’s feeling that — and at so young an age.

19 Comments

  • jeanne says:

    Assure her she IS beautiful as are ALL of God’s children, no matter what color, shape, or form they take! It is a terrific picture!!! She’ll make a fantastic Mary. So HAPPY that you’re all doing well.

  • Wendy Mastronardi says:

    She certainly is beautiful. …in this picture and as I said good morning to her at church today.
    She will be a perfect Mary. I’m sorry I won’t be at the Christmas Eve service, I host Christmas Eve for my husbands family.
    My love to you and your whole wonderful family.

  • Cheryl says:

    She IS BEAUTIFUL… always… I’m tearing up reading this and trying to respond without crying.

    She is going to be an awesome Mary and I love that she wanted the role… it’s one of the best ones..

    Love to you all.

  • Veronica Morra says:

    Both girls are beautiful!! Besides, as I wrote in my email and I repeat, it is your inner beauty that matters: hard to explain to a child.
    For you, I have a separate note:
    Love this Japanese Doctor!

    Q: Doctor, I’ve heard that cardiovascular exercise can prolong life. Is this true?
    A: Heart only good for so many beats, and that it… Don’t waste on exercise. Everything wear out eventually. Speeding up heart not make you live longer; it like saying you extend life of car by driving faster. Want to live longer? Take nap.

    Q: Should I reduce my alcohol intake?
    A: Oh no. Wine made from fruit. Fruit very good. Brandy distilled wine, that mean they take water out of fruity bit so you get even more of goodness that way. Beer also made of grain. Grain good too. Bottom up!

    Q: How can I calculate my body/fat ratio?
    A: Well, if you have body and you have fat, your ratio one to one. If you have two body, your ratio two to one.

    Q: What are some of the advantages of participating in a regular exercise program?
    A: Can’t think of one, sorry. My philosophy: No pain…good!

    Q: Aren’t fried foods bad for you?
    A: YOU NOT LISTENING! Food fried in vegetable oil. How getting more vegetable be bad?

    Q : Will sit-ups help prevent me from getting a little soft around the middle?
    A: Oh no! When you exercise muscle, it get bigger. You should only be doing sit-up if you want bigger stomach.

    Q: Is chocolate bad for me?
    A: You crazy?!? HEL-LO-O!! Cocoa bean! Another vegetable! It best feel-good food around!

    Q: Is swimming good for your figure?
    A: If swimming good for figure, explain whale to me.

    Q: Is getting in shape important for my lifestyle?
    A: Hey! ‘Round’ is shape!

    Well… I hope this has cleared up any misconceptions you may have had about food and diets.

    And remember:
    Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well-preserved body, but rather to skid in sideways – Chardonnay in one hand – chocolate in the other – body thoroughly used up, totally worn out and screaming “WOO-HOO, what a ride!!”

  • Tori Tomalia says:

    Oh, what tricky territory. I wonder if, instead of well-meaning negation of her feelings, what would happen if you asked her to explain more. Maybe even get out pictures of her pre-treatment, during, and now. One of the most upsetting things about cancer is that it makes us feel powerless (I am a two-time visitor to Cancerland). She may be old enough to process these feelings verbally; how it felt to have her hair taken away, her face and body changed, and now it is changing again. Good luck! Growing up is hard. Throw cancer in the mix and you’ve got a whole new level of challenge.

  • Ewokmama says:

    I wonder if this is a thing with kids who go through cancer and see so many changes with their appearance. Jack is very sensitive about his. He doesn’t understand just how handsome he is!

    I suspect it’s not really a reaction to what they are seeing physically, but how they feel about all the rapid changes and a lack of a sense of self due to that. I’m not sure how to fix that, though…

    Do you think it would help to point out how her features resemble yours and Alistair’s? And the things that are the same as Elsa? I would bet she thinks the rest of you are gorgeous and a lot of time it’s easier to see beauty in others.

  • Libby says:

    I don’t want to detract from the conversation about Clio, because I think it’s an important one, but I wanted to address Veronica Morra’s addendum. Why does the doctor need to be Japanese in this story? Sure, the message is potentially uplifting, etc., but the characterization of the doctor is unnecessarily pejorative…

    Respectfully,
    Libby

  • Zoe says:

    Jane, Is it possible Clio’s face isnt round but that in fact Elsa’s face is just long. My boys who are fraternal twins and have very different shaped faces – one round, one longer, just like my husband and I.
    Maybe aside from her medical journey she just needs to be shown old family photos of who she most takes after in her loving family? And to see herself as different from her twin in a positive light.

    • E says:

      This was my first thought too — cancer notwithstanding she’s just comparing herself to her twin sister who has a different face shape than her own.

  • Lindsey says:

    She looks beautiful and radiant, but I totally feel your pain – have been in the exact same place, and felt rage at the world that it seems to be automatic that girls begin to feel this, and at such an early age. Why? xoxo

  • Susan Allen says:

    As a therapist, I’m wondering if the trauma of all the appearance changes Clio had to endure so bravely during her cancer treatment are finally catching up with her. When most people are in crisis, they put on blinders and soldier on because they have to. But once the crisis is over, it often really hits them in a delayed response kind of way.

    Not sure if this is the right approach or not because I’ve never worked with kids who’ve battled life threatening illnesses, but perhaps you could get your hands on some pictures of kids who had cancer while they were in treatment and then pictures of them several years later or even all grown up. Show her the changes in others who have been down a similar path. Some perspective and hope rolled all into one. Does Clio have a social worker or therapist who might have suggestions on what to say, how to handle this?

    Regarding, girls and self-esteem, it’s so tough. Emmy is 12 1/2 and complains that all her friends are thin and she is not. She makes a big show of her “chubby” tummy. I remind her that she is athletic and strong and built just like me. We sing loudly to Meghan Trainor’s “All About That Bass.” Modeling positive self-esteem is so important. It makes me crazy when mothers diss themselves (or others) in front of their daughters.

    Anyway, please tell both your daughters I look forward to seeing them in the pageant on X-mas Eve!

  • April says:

    She is adorable and she is lovely. I don’t have a sister but I know sisters often compare themselves to each other and twins make it even worse. Maybe she likes the way her sister looks better. I would try complimenting specific features she has her sister does not have and that might help. This too will pass. She is starting this worry over looks so early though. Which is understandable due to the cancer changing her appearance so much temporarily-but she will eventually move on and forget about it. Get her involved with lots of other stuff to keep her mind off of it.

  • Gail Erdos says:

    jane,
    As always, great questions mixed with wit. I look at my pre-Cancer self and mourn the loss of some of my appearance that has changed. Then I remember that I survived and am happy to be here, with flaws and thinner hair!
    Having two daughters, I get it, Cancer or not. Now that they are older they find it “boring” when girls focus so much effort on looks.
    Having had a daughter with a serious eating disorder a few years ago, I have lots of opinions that I’ll shAre with you, over a nice white wine.
    I looked at clio today and didn’t even consider beautiful or not. I just saw a beaming kid making a snowman xoxo

  • I think about this a lot. My kids are beautiful. But does it matter? I wish it didn’t, but it really seems to. The world treats pretty people differently, and it’s still the primary thing people pass first judgement on with girls and women. Who doesn’t want to feel pretty? I’m not sure how to tell my girls how to navigate these waters since I’m not so good at them myself. I just tell them they both look wonderful and are wonderful, and I try to remember when being hard on my own appearance to remember I’m someone’s daughter too, and how sad it would make my mother not to try to see what she sees when she looks at me.

  • SarahB says:

    Oh, she is so beautiful. Truly. Full of life and grace and echoes of the young woman she will become.

    She may not listen to Mom, but you tell her that some Internet strangers think she’s gorgeous.

    I do wonder….is part of it being an identical twin, and having this image of what her “no cancer” self would look like right in front of her? Like that is how she is supposed to look, versus how she does?

  • Michele says:

    I see two absolutely gorgeous girls who just have different features! I have two fraternal girls too and I think they just naturally compare themselves to each other. I hope and pray for you all and would tend to think/hope that she is just going through these emotions now that the biggest stress is behind you all. Enjoy the play!

  • Ellen says:

    Firstly both of your girls are beautiful…

    I am someone who for many years struggled to feel “pretty” at any level. I was not and indeed am not the vision of picture perfect cuteness that we are all expected to be. And sometimes you just want to feel pretty.

    What worked for me was to have a treat of some kind… Maybe take both girls for a manicure or similar and let the beautician know that praising her lovely hands etc would be really helpful.

    Feeling a little more polished than normal made me feel a bit more comfortable in my own skin. And often after the manicure has faded the comfort from it doesn’t.

  • Elizabeth says:

    Oh, this just breaks my heart. There is something so humbling and horrifying about watching our children experience pain that we cannot help, especially psychic pain. While physical pain can be scary, there are doctors and medicine and treatment plans. What’s the treatment plan for convincing them that they’re beautiful when they don’t feel it? That they’re strong when they feel weak?

    Sending lots of love to you and your beautiful family and hoping Clio can see herself as we all see her soon!

  • Gran Información. Me Lucky me encontré su sitio
    web por accidente (StumbleUpon). Tengo libro marcó para más tarde!